26/01/14

The last week or so we have been a lot more autonomous  which has had good and not so good parts but over all the lack of a set structure has been better than I expected considering how Jack has reacted to that in the past. Jack has done loads of reading, mainly through his pokemon game and a pokemon book that is a encyclopaedia of sorts with details and stats of every pokemon.  We also subscribed to Netflix and he has wanted to read the details of each program before watching it. We have a  good list of documentaries, mainly animal related to watch through 😀

Jack did some spontaneous writing of pokemon names and his writing is improving (last summer the site of pen and paper could cause a meltdown), he said that he was hurting him. I suspected that was the issue as he can’t grip the pen well but he has never actually voiced it, just gets frustrated and cross or refuses. Perhaps the GP will take some notice if Jack tells him the problem. The last couple of times we have been walking down to the surgery in town rather than the one 10 minutes from us as the doctors there take more notice and do more so I am hopefully for his appointment tomorrow. Three times I got fobbed off by our normal surgery over his seizures, even after keeping a diary but we saw a doctor at the other surgery and he referred us to a neurologist straight away. Tests showed I was right and he was having absence seizures (many more than we initially though) which have no progressed to myoclonic seizures.

Wifi pokemon trades are still a firm favourite and sparked lots of interest in the various countries, where they are and what they are like. I am thinking we could expand on that with cooking related foods or trying crafts or observing holidays etc. Jack has been talking to a girl in Sweden over the trade chat facility and he is loving having someone to talk to who loves pokemon as much as he does.

We have worked on money skills – opening a bank account, putting money in and then using it in the best way… if he spends it all at once he will be without any money till a set day. Jack likes the coin counting machine and is saving ‘brown’ money in his money box to put in it. Jack has chosen a fruit tart to have a go at making and made a start on planning this years veg garden too.

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We had planned to go on the London Eye over the half term but the weather was so wet and cold we stayed home. It is less than an hour away so something we can do any time and may well of been super busy through half term anyway. Nice that is right near the aquarium as well as Jack can get his fish fix 🙂 New glasses are fab too! twice the lens has come out from being sat on/screwed up and though it’s not that easy they pop back in. Nearly two weeks and not had to use the spare pair or have repairs done is a record I think and they must be more comfortable as Jack wears them all day with no issues.

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Pokemon Wins again

Over the weekend I connected Jack’s 2DS to the wireless internet so that he could battle and trade with other players on his Pokemon X game and his is loving it. He has had fun trading, playing other people and seeing their Pokemon but it has also sparked an interest in geography. Although there is no chat feature or anything similar each player has a small profile that has basic details such as name and country and Jack has been asking about the countries, where they are and how away they are from us. We have a stuffed globe so we have been looking for the countries although I don’t think the concept of how far away they are is something he can fully understand yet. I have explained that it takes us 5 hours to get to Grimsby and related other places to that which does appear to be helping. Jack was excited to find someone who lives in Tokyo and I have suggested that he has a look for some of the places on Google Earth next time he is on the laptop. Google Earth has always been a hit since I showed him our new house/street/town etc. before moving here. Proving again that motivation and interest are key.

Jack’s new glasses came from the hospital and they gave me two pairs. Finally! The optician always said it wasn’t allowed even though I told them the hospital had said he should have two pairs due to him having other special needs and the increased risk of breaking. These new ones have a plastic and silicone frame and they are brilliant, so much harder wearing than any he has ever had. Only one day in they survived a meltdown and being bent till both lenses popped out! I had to bend them back into shape a little and the lenses can be pushed back into the frame without too much trouble. Definitely sticking with these and Jack has been wearing them much more willingly, I haven’t had to remind him to put them on once so perhaps they are more comfortable too.

Today was a trip to the bank so Jack could use the coin counter and pay the money into his account and we bought some more stickers for his animal sticker album which has been giving him loads of new information on animals.

Pokemon gets in everywhere 😀 he he I.T lesson of Google searching and how to save images and Publisher to make a collage of favourite Pokemon… with a little help from big brother 😀

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Monday Morning Post

The post this morning consisted of DIY patches and a vegetable growing guide for Jack that he wanted to order from Which? and boring things for me!

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This morning I showed Jack the Oneminute Physic channel on YouTube which he enjoyed  and he tried mushrooms, raw and fried. He is currently searching for Pokemon pictures to make a ‘My Top Favourite Pokemon’ poster in Publisher… little bit of sneaky I.T in there he he

04/02/2014

One month gone of 2014 already! And it has been a very good and positive month for us too 😀

This week we started off with a trip to a soft play centre near us and then a trip to chose a lamp for the living room. We looked in B&Q and Argos and then found the same lamp I was thinking of getting was reduced to half price in Homebase so that sorted that. Jack loved the kitchen displays in Homebase and set off opening every cupboard and drawer he could. The staff were lovely and didn’t mind at all. They even pointed him in the direction of things he would like 🙂 Jack decided he wants one of everything! Me too son and in a space half the size of our kitchen they had easily double the storage with all the clever ideas they have. Maybe if we win the lottery one day…

We have had a worm farm container upstairs for ages waiting to be used. All the sand and soil is missing but garden soil and sand leftover from the garden tiles worked out fine. A couple of fork full of earth and we found three worms to go in too. Hoping they will makes some good tunnels for Jack to see.

Next on to some Brain Pop which Jack is really enjoying. They are running a free trial for this month. When the trial is up I may subscribe if he is still enjoying using it. The site covers a lot of subjects and is fun and very visual so just Jack’s kind of thing. After watching a video about Ronald Dahl Jack wants to read some of his books and I think he will like The Twits so will start with that. Six months ago he wouldn’t of been keen on the idea of me reading him a book or reading it together at all. Sum Dog is still a favourite too though mainly for the maths. Writing is still not something Jack enjoys although he is so much better than he was.

A while ago I downloaded a maths pack from the School Run that Jack has been working through and finished off what I had printed today and wants to carry on so I will print the rest now. Today Jack also told me there is an author with a beard called Homer and a scary story with a dragon called Beowulf. Just goes to show learning happens all the time because I didn’t teach him either.

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Then this evening some reading purely out of choice. Pokemon of course but good, accurate and clear reading out loud 😀